Mashawna ThompsonвЂ™s child, Lyra, arrived to the planet with often skin that is pale a full mind of nearly-transparent hair. By all measures, she ended up being breathtaking. Then again Mashawna experienced that minute that most brand new moms and dads fearedвЂ“the doctors suspected that one thing had been вЂњwrong.вЂќ Ultimately, child Lyra had been identified as having albinism.
Lots of people are not really acquainted with the word вЂњalbinism,вЂќ but everybody has been aware of вЂњalbinos.вЂќ And that’s just the tip regarding the iceberg of misunderstandings.
While Lyra, that is now a thriving 9-year-old, has many real challenges as a result of her condition вЂ” she’s bad vision, light sensitivity, and painful and sensitive epidermis вЂ” the obstacle that is greatest that this family members has faced is the multitude of misunderstandings that individuals have actually about albinism.
In accordance with Mashawna, whom blogs at Parent of a young child With Albinism, вЂњIt really bothers me personally when anyone simply stare, which takes place A LOT.